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The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Ionis is proud to be a long-time collaborator with the Angelman Syndrome Foundation.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by prion disease, raise awareness, and support medical education and research. The Foundation’s philosophy is to be proactive by establishing collaborations and linkages, communicating with family members, researchers, physicians, and political representatives, and informing the broader community about CJD. Ionis is proud to have a long-standing partnership with the CJD Foundation.

The CJD International Support Alliance (CJDISA) was formed by a group of grassroots nonprofit organizations that work together as an international coalition on behalf of patients and families affected by prion disease and those at risk the world over. Currently, the CJDISA has 18 member organizations. Ionis has been a proud partner to CJDISA since its inception.

It is the mission of End Alexander Disease to be a catalyst for research and development of a treatment, and eventual cure, of Alexander Disease, and to help those with this disease get the care they need. Ionis is proud to partner with End AxD.

The Foundation for Angelman Syndrome Therapeutics (FAST) is a leading patient advocacy organization working to cure Angelman syndrome. As the largest non-governmental funder of Angelman syndrome research in the world, our goal is to drive forward transformative research and development programs as quickly as possible for those living with Angelman syndrome — regardless of age or genotype. To help it execute its mission, FAST has created a global network of ambassadors and affiliates. Ionis is proud to be counted among FAST and its affiliate collaborators.

The United Leukodystrophy Foundation (ULF) is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling. The ULF works to establish a communication network among families; it also increases public awareness and acts as an information source for health care providers by promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. Ionis is proud to be counted among the many industry partners that ULF collaborates with.